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Doctors...

Fish

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Before I start saying anything, I'll apologize in advance to anyone here who happens to be a doctor -- Especially if you're a competent doctor. ;)

Something nobody here knows about me is that I live with my dad. Or I suppose you can say he lives with me, because he can't support himself right now. Over the last 8 years or so, he's become progressively sicker with varying diseases and ailments. he is currently 54 years old, so these issues are starting at a very young age.

It started with him having hip pain one day. He went in to see a doctor and was told he'd need a procedure called an IT Band Release. It's a procedure where they go into a person's hip and cut small slits in the tendon that covers the joint, to make it more flexible. It took almost 1 year to get him scheduled for the surgery. All the time, he couldn't work because it quickly deteriorated from "mild hip pain" to "if I walk the pain is so bad, I almost pass out."

So, fast forward about 1 year. He has the surgery they said everything went as planned during the procedure. He has to use a walker to get around, but the doctors say he should be able to transition to a cane within 4 weeks and be walking on his own within 6 weeks. The day after the surgery I went to work, but my aunt stayed with him because he wasn't support to be alone for more than a few hours for the first few days after surgery. Before I got home, my aunt left to go to her job. But he was only going to be alone for about an hour, so nobody thought anything of it. I got home, walked in his room to check on him and found him passed out, shaking a bit and not responding to me trying to wake him up. I called 911 and shortly after that, he came to a bit, but still really out of it. Didn't know who I was, where he was, anything. So that resulted in a 2 week hospital stay, with doctors trying to figure out what's wrong with him. Two weeks later he was diagnosed with Atrial Fibrillation. They put him on some meds and send him home.

Four weeks later, when he's supposed to be transitioning from a walker to a cane, he can still barely walk even with a walker. The answer we get from the doctor is "well, everyone heals differently." Which is true, I totally get it. Lets move forward SIX months now. Still on the walker, having issues walking with that. Long story short, it took a full year before he was able to transition to the cane and another year before he was off of that and walking on his own. To this day he still has mild hip pain all day, every day and walks with a limp. But he doesn't need a cane anymore.

Pretty much right after he gets off of the cane, there was an event where he passed out and fell down in the hallway (again hurting his hip in the process). I was home, so I was able to get him help immediately. He came to right away, but was a bit disoriented. He hit his head pretty hard, so I thought it best to take him to the emergency room to get him checked out. They determined that his medication dosage needed to be increased and they gave him some pain killers for his hip. They made an appointment to do a stress test on his heart and look at it with a scope, for 6 weeks later.

The procedure where they look at the heart (can't remember the name of it right now) was a semi-major procedure and required him to be in the hospital overnight. They take a small camera and insert it into the artery in the wrist and fish it up to the heart to look at things. Turns out that, other than the A-Fib, everything looks great. During this procedure, since they have to literally cut a whole in an artery, they put a pressure bandage on his wrist for 2 hours to keep it from bleeding. Well, the nurse left the bandage on too long and it completely crushed the artery going to his hand.

A few weeks after this he was having extremely severe pain in his arm. Bad enough that he couldn't wait for just another doctor appointment and we went to the emergency room, once again. He was then diagnosed with Complex Regional Pain Syndrom -- A side effect of the crushed artery. He now has constant pain in his left arm that will be there for the rest of his life. Most days it can be managed with over the counter meds, though.

Things go with these conditions, for about 4 years without too much trouble. A person gets tired of being in pain all the time. But for the most part he's learned to live with it. He was even able to get everything under control long enough to get a job and hold that for awhile. Things were looking good, I was getting ready to move out because he could support himself and all that.

Then about a week before last Christmas, I found him laying in the yard. He was trying to stand up, but couldn't get up. He would lose his balance and fall again. I called an ambulance, they picked him up and took him to the hospital. After being in the hospital for a few days, he was diagnosed with Postural Hypotension. This is happening because his heart medication is no longer effective. Because it's not effective, when he stands up his blood pressure drops to the point where he gets dizzy and loses consciousness. This time they gave him some "pressure socks" and sent him home. But since then, it has gone down hill fast. He lost his job, because there were literally days where he couldn't get out of bed without passing out. He gets noticeably sicker each day and you can tell it's wearing on him emotionally as well.

As a result of all this, he has been in the emergency room 22 times in the last 4 months and he's had a nearly equal amount of appointments with doctors. We've heard everything from doctors ranging from "you're just dehydrated, drink more water" to "get a job as a door greeter at Walmart so you can pay your bills." So, as you can probably imagine, right now I'm very mad at doctors in general. They've been passing him from one to another, wracking up bills that I have to pay out of pocket and doing nothing more than making him feel bad about himself.

Right now, as I write this, my dad has been in the hospital since Monday evening. This time there's a bit of hope though. A new doctor that we haven't seen before got involved. A doctor that actually seems to care. This is actually the first doctor we've seen in all this time that walked into the room and had actually read my dad's history file. Previous doctors walked in clueless or acted as if my dad was faking. This doctor actually knows what he's going through, believes him and shows him compassion when helping him with his problems. This doctor took the time to sit down with us and learn what this is doing to his life (and mine) and help make a decision to get things back on the right path. He's going to have a consultation to get a cardiac ablation done on his heart and then if that doesn't work, a pacemaker. After all of this, there's finally light at the end of the tunnel and maybe we can get my dad at least semi-healthy again.

But my opinion of doctors, nurses and just the medical field in general has taken a real beating over the last few years. We've seen more doctors than I care to count over the last 8 years or so. So many specialists, nurses and nurses aides. It took 8 years of going through all of this to find ONE doctor who cared enough to take the time to get things right. Is this what our medical industry has come to now?
 
Jesus. I really don't have much to say. These posts are incredibly difficult to write and thank you for sharing....

I'm just thankful you two are finally being treated the way you NEED to be. I can't even imagine going through a system and just ending up in this situation. My prayers will be with your father (and you).
 
He had a cardiac catheterization through his arm? Is that because of the hip injury? Usually they go in through the groin - it is much more robust and just better in a lot of ways. I am a former EMT and just graduated from nursing school and I have seen situations like this before. It sounds like the healthcare in your area isn't the greatest to be honest. I just finished working in a cardiothoracic surgical stepdown unit in Weill Cornell medical center, which is associated with Cornell's medical college, and I have to say the care is top notch. I know a good amount about this kind of stuff now; most of our patients had some level of atrial fibrillation (a. fib) and luckily many don't even need meds; it can be perfectly livable since the atria are only there to push blood down to your ventricles. Cardiac ablation is basically either an electrical or surgical destruction of whatever heart tissue is causing the arrhythmia but isn't normally used to treat atrial fibrillation (which I assume is causing his orthostatic hypotension issues). Hopefully after that it will sort itself out. If he keeps getting the run around I can't say enough about Weill Cornell's cardiac unit (we have the #2 cardiothoracic surgeon in the country there) and you may want to look in to bringing him somewhere that has the level of skill needed.

If you have any specific questions or concerns I'd be happy to talk to you about it; albeit my knowledge isn't exactly at the highest level quite yet, but I do know a good amount about this stuff.

Does he have arterial insufficiency in his arm? has the skin become thin/red/shiny?
 
Yes, that's it. Cardiac catheterization. They did that to examine the heart for blockage, because of the heart problems he developed right after the hip surgery. They assumed that his a-fib was being caused by blockage. But it wasn't because everything came out clear.

His arm is no red or shiny, like all the descriptions say it should be. However, it is in pain most of the time. But manageable pain. Despite it not having turned red, his doctors still insist he has CRPD in that arm. What we were told is that there are only 2 main arteries in the arm and now one of his is crushed. So, having something happen to the other one could potentially cause a loss of the arm. For now circulation is OK in the arm.

We found out something else last night, when consulting with the surgeon about the ablation. He has atrial fibrillation AND atrial flutter. So, the plan right now is to do the ablation for the flutter to try to resolve that and then manage the a-fib with medication for while. They said they'll see how that goes and then do an ablation for the a-fib down the road if needed. This is something neither him or my self heard about before last night (the flutter) so it came as a surprise to both of us.

Anyways, he went into surgery about 2 hours ago and they said it could take 4-6 hours to complete, depending on how long the mapping of the heart takes. The doctor that's doing the procedure is actually a surgeon from the Mayo Clinic. I guess he comes here once every 4 weeks to do a few of these procedures and we got lucky that my Dad went into the hospital 2 days before he was scheduled to be here.
 
That's really great! I have a friend that worked for the Mayo clinic, and they are generally really ahead of the game on a lot of things. I'm sorry to hear about all the issues that have been arising, it must be really difficult for you guys. Arrhythmias can be very individualized in their nature and how they affect you/are treated. Ablations can be a very good solution and permanent solution, so I hope it works out!

Again, let me know if you need anything! I'll keep you guys in my thoughts!
 
I agree with you when it comes down to "bad doctors". I'm not a fan. I understand that they shouldn't be getting sued all the time so that they can do their jobs, but I feel some doctors are so inept that they should be. There should be something in the system in-place so that you can tell the level of ineptitude. I'm all for more accountability.

My younger sister suffered very painful indigestion-type problems for over two years. She had all sorts of tests done and tried all sorts of things, but nothing fixed it. Then in January 2012 after I had my gall-bladder taken out, I was visiting when she had an episode and she was having the exact same symptoms I did before I had mine taken out (tip: it's probably your gallbladder if you ate something buttery/fatty/etc. and feel like it gave you heartburn). Long story short, she went to the same surgeon, he had her checked out, then they removed hers and now she is fine.

Another instance went much worse though. My grandfather kept having various health problems. He eventually had a mini-stroke that resulted in a fall that broke his back. Long story short, he finally went to another doctor who diagnosed him with some cardiac trouble which required that he get a pacemaker. After recovery from getting it, you could see his health improving visibily. Sadly, by the time we saw this better doctor who actually solved the real problem, his health had deteriorated so much that he died last May 2012.

There were so many signs that made it obvious to the 2nd doctor that I'm not even sure how the first one missed it.

More accountability would be nice. Lives are something that cannot be replaced.
 
Then in January 2012 after I had my gall-bladder taken out, I was visiting when she had an episode and she was having the exact same symptoms I did before I had mine taken out (tip: it's probably your gallbladder if you ate something buttery/fatty/etc. and feel like it gave you heartburn).

Yeah, cousin got hers taken out. Doesn't give me heartburn but it just runs right through me TMI lol

P.S. I hate doctors. Mostly because of my own stupid fears. But i have seen so many times where a doctor gave a bad visit and it turn out. (Not exactly a doctor problem but you get the point) My wifes friend in school went to get some blood work taken and the nurse couldn't hit the vein on the first.. second.. or third mark. so long story short it turned into a clogged artery(i think) in her arm
 
I wouldn't say I hate doctors. In general, I have respect for people who have put time into being part of the medical field. It takes a lot of effort and usually you need to be someone who cares about people to actually put that time, effort and money into being there. But it feels like some doctors (maybe most?) lose touch with reality and become insensitive to very personal situations, after being in the field for awhile. That's what frustrates me the most, I think.

The one time that I was personally sick enough to need to be in the hospital, I felt like I was well taken care of. But that wasn't anything major -- Just getting my appendix removed.
 
I wouldn't say I hate doctors. In general, I have respect for people who have put time into being part of the medical field. It takes a lot of effort and usually you need to be someone who cares about people to actually put that time, effort and money into being there. But it feels like some doctors (maybe most?) lose touch with reality and become insensitive to very personal situations, after being in the field for awhile. That's what frustrates me the most, I think.

The one time that I was personally sick enough to need to be in the hospital, I felt like I was well taken care of. But that wasn't anything major -- Just getting my appendix removed.
Good thing man ... that doesn't do anything anyways except hide inside your body and wait for a time to explode and kill you. Sneaky little devil. Organ my butt.
 
I personally have a vast preference for Nurse Practitioners over doctors whenever possible (probably why I'm going to school to become an NP haha). I could get in to the doctor style of thinking (human machine) vs the NP (human being), but in general I just always feel more at ease with a Nurse Practitioner. I've seen some really terrible interpersonal skills from a lot of doctors over the years, and its really awful.

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I personally have a vast preference for Nurse Practitioners over doctors whenever possible (probably why I'm going to school to become an NP haha). I could get in to the doctor style of thinking (human machine) vs the NP (human being), but in general I just always feel more at ease with a Nurse Practitioner. I've seen some really terrible interpersonal skills from a lot of doctors over the years, and its really awful.

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My wife feels the same way as you do and my mother is a Nurse Practitioner. That is so helpful to have in the family.
 
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